Shifting into High Gear with Kyle Bryant

Author, Podcast-Host, Ted Talk speaker, and subject of a documentary film, Kyle Bryant was diagnosed with Friedreich's ataxia (FA). a degenerative neurological disease that affects one in 50,000 people- making it officially a 'rare disease.' Kyle uses his life story to teach us how to replace the handicapping language of 'disability' with the agency to build a thriving and hopeful life.  Hear how Kyle traveled on his trike twice across the United States.

 

About the book:

Author Kyle Bryant was diagnosed with Friedreich's ataxia (FA). a degenerative neurological disease that affects one in 50,000 people- making it officially a 'rare disease.' Kyle uses his life story to teach us how to replace the handicapping language of 'disability' with the agency to build a thriving and hopeful life.

About the Author:

Diagnosed with a debilitating disease called Friedreich's ataxia (FA) at age seventeen, Kyle Bryant set off across the country to raise awareness. Today, he is the founder and director of rideATAXIA—a fundraising program of the Friedreich's Ataxia Research Alliance (FARA) which welcomes thousands of participants who raise 1 million dollars for research every year.

As the public face of FA and spokesperson for FARA, Kyle is in the vanguard of individuals who lend their passionate voices to the rare disease community. As he struggles to manage his own declining health and keep the FA research torch burning for a cure, his one-to-one grassroots efforts provide hope for recently diagnosed patients and those well into their journey, inspiring and coaching them toward the finish line. Kyle lives outside of Philadelphia, which is the base of operations for FARA, where he rides his beloved recumbent trike throughout the year.

Event date: 
Tuesday, March 26, 2019 - 7:00pm
Event address: 
338 Newbury Street
Boston, MA 02115
Shifting into High Gear: One Man's Grave Diagnosis and the Epic Bike Ride That Taught Him What Matters Cover Image
$14.95
ISBN: 9780757321528
Availability: On Our Shelves Now
Published: Health Communications Inc - February 26th, 2019